I cared for my grandmother, who had Alzheimer’s disease. My grandmother raised me, and we spoke every day. She was diagnosed three years before she died, but I felt like I was losing her, different parts on different days well before she left me. All of the changes that went along with her disease process resulted in a different person; she was still there, but only in glimpses. I felt loss and grief throughout the disease process, and sought out support. The supports I found with my family and friends, but especially through support groups specific to this disease, were my lifeline. My grandmother has been gone for over a year now, but I still attend these support groups. I have also joined a grief and support group since her passing, which has helped me understand the process of working through my grief and this loss.
 

• Local groups will often offer support in memory and honour of those we miss (e.g. music, readings, candle lighting, etc.).

• The process of grief is not the same for everyone. It comes in waves as you move through different stages at different times, grieving your former life and future dreams. Coping mechanisms will be unique to each individual as well.

• Don’t be afraid to seek help and support; access social workers, counsellors and other professionals if needed.

• Talk to others who can relate to your experience; other caregivers, family and friends.

• Grief and feelings of loss do not only happen at death – a new diagnosis or changes in condition can precipitate these feelings. You may be experiencing grief without even realizing it.